The Nesting Journal -Caregiver Stories & Support

Caregiver holding hands with a loved one with Parkinson's disease — caregivers often notice the smell of Parkinson's before a formal diagnosis

The Lamest Superpower: What It's Like to Smell ...

For years I told my husband he needed a shower. It turned out I was smelling Parkinson's disease. The science behind what caregivers have been quietly noticing for years.

The Lamest Superpower: What It's Like to Smell ...

For years I told my husband he needed a shower. It turned out I was smelling Parkinson's disease. The science behind what caregivers have been quietly noticing for years.

Caregiver holding the hand of a loved one with Alzheimer's disease — dementia caregiver support resource from Robbins Nest Alliance.

Alzheimer's Disease: What Caregivers Actually S...

Most families have heard of Alzheimer's disease. Almost none of them are prepared for what it actually looks like to live with it — the sundowning, the paranoia, the grief...

Alzheimer's Disease: What Caregivers Actually S...

Most families have heard of Alzheimer's disease. Almost none of them are prepared for what it actually looks like to live with it — the sundowning, the paranoia, the grief...

Caregiver awake at night watching over a loved one with TBI — representing sleep disruption in traumatic brain injury families, from Robbins Nest Alliance.

TBI and Sleep Problems: What Caregivers Need to...

If your loved one has a brain injury and can't sleep, you've probably been told to reduce stress. That's not wrong — but it's not the whole story. Sleep disruption...

TBI and Sleep Problems: What Caregivers Need to...

If your loved one has a brain injury and can't sleep, you've probably been told to reduce stress. That's not wrong — but it's not the whole story. Sleep disruption...

Five types of dementia illustrated as brain silhouettes — Alzheimer's, Lewy Body, Frontotemporal, Vascular, and CTE-related cognitive decline — caregiver education resource from Robbins Nest Alliance.

5 Types of Dementia

Not all dementia is the same. There are five distinct types — each one attacking the brain differently, progressing differently, and showing up in your home differently. Here's what your...

5 Types of Dementia

Not all dementia is the same. There are five distinct types — each one attacking the brain differently, progressing differently, and showing up in your home differently. Here's what your...

Caregiver sitting alone at kitchen table in early morning light representing the quiet exhaustion of caring for someone with CTE or TBI

To the Caregiver Who Thinks They Are Failing

You are not imagining it. You were not overreacting. You are not failing. You are caring for someone whose brain is working against them every single day — without a...

To the Caregiver Who Thinks They Are Failing

You are not imagining it. You were not overreacting. You are not failing. You are caring for someone whose brain is working against them every single day — without a...

Kitchen stove left on with forgotten pot representing executive dysfunction and daily life with CTE

This Is What CTE Looks Like Inside Our Home

Nobody really talks about what CTE looks like behind closed doors. The stove left on. The shower turned off. The railing. The sniper in the trees. This is our house....

This Is What CTE Looks Like Inside Our Home

Nobody really talks about what CTE looks like behind closed doors. The stove left on. The shower turned off. The railing. The sniper in the trees. This is our house....