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Lewy Body Dementia: What Caregivers Need to Know | Robbins Nest Alliance
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Related learning paths
- Navigating dementia
- Browse all Nesting Journal articles →
- CTE in veterans: why it presents differently
- Military and combat-related brain injuries
More in this topic (9)
- Morning Coffee with Heather
- Heatherisms
- Share Your Story
- Education hub Brain Injury 101 Foundational brain injury education covering symptoms, cognitive changes, and what families need to understand first. Explore Brain Injury 101 →
- Condition hub CTE and Repeated Head Impacts The science of cumulative brain trauma, CTE stages, and what the research shows about long-term risk. Explore CTE →
- Condition hub Functional Neurological Disorder What FND is, why it is misunderstood, and how caregivers can support someone through flares and daily symptoms. Explore FND →
- Condition hub Concussion and Post-Concussion Syndrome What happens after a concussion, why symptoms persist, and what families need to know about recovery. Explore Concussion →
- Condition hub Parkinson's Disease Symptoms, progression, daily caregiving, cognitive changes, and caregiver emotional health for families navigating Parkinson's disease. Explore Parkinson's →
- Brain injury glossary
Understanding the diagnosis
- Lewy Body Dementia: What Caregivers Need to Know | Robbins Nest Alliance
- Aphasia for Caregivers: Understanding Wernicke's & Broca's
- 4:47 PM: The Sundowning Hour That Changed Our Lives
- A Guide to Dementia Communication Strategies
More in this topic (7)
- Family Guide to Traumatic Brain Injury
- Why Brain Injuries Change Personality: Anger, Withdrawal, and Everything In Between
- What Is Confabulation? When the Brain Creates Memories That Never Happened
- What Retrograde Amnesia Actually Feels Like — And What Caregivers Need to Know
- What Our Minor Inconveniences Actually Look Like
- Brain Injury Behavior Change Examples
- The Grief That Has No Ceremony: Ambiguous Loss and the Caregiver's Hidden Moment
Managing the daily work of caregiving
- Parkinsons Home Safety Checklist That Helps
- How to Create Care Routines That Hold Up
- How to Document Neurological Symptoms
- How to Document Symptom Changes Clearly
More in this topic (11)
- How to Track Medication Side Effects
- Parkinsons Caregiving Roadmap Guide
- Beyond One Hour: Why We Drive Instead of Fly When You Love Someone With a Brain Injury
- Caregiver Communication Scripts That Help
- We Still Go Out: Fighting the Pull Toward Homebound
- The Lamest Superpower: What It's Like to Smell Parkinson's Disease
- 8 Essential Tools for Medication Management
- How to Create a Behavior Log That Helps
- Guide to Caregiver Crisis Planning for Hard Days
- Neurological Crisis Planning Template for Families
- Caregiving at Home Versus Assisted Living
Caregiver emotional health
Veteran and military family caregiving
Outside resources and organizations
- caregiver.va.gov
- Access the pathway at PsychArmor
- VA Long Beach Caregiver Support
- elizabethdolefoundation.org
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Practical tools
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Choose a free resource or explore an optional paid organizer. These tools support education and organization.

Free Brain Injury Caregiver Guide
A free starting guide for families navigating brain injury and caregiving.
See the download →
Caregiver Medical Appointment Packet: Track, Record, and Remember Every Visit
Organize questions before the appointment, notes during it, and follow-up steps afterward.
See the download →
The Caregiver's Medical Binder
Keep medical information, medication lists, observations, and appointment notes together.
See the download →Digital resources, not physical products. Cover illustrations are shown except where an actual page preview is labeled. See all guides and downloads →
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Educational information and personal perspectives do not establish a diagnosis or replace medical care. Bring questions about symptoms and treatment to a qualified health professional. For sudden or severe symptoms, seek prompt medical attention.